Friday, 29 April 2016

Medicalising Motherhood: a peek inside LHSA’s birth records

This week, Archivist Louise has been introducing LHSA’s maternity records to new audiences:

As Archivist, I’m sometimes asked to talk to organisations about the records that we have and what we do, and last week the Scottish Genealogical Society asked me to go along to give an evening lecture on birth records.

Maternity records are often confused with birth certificates, but whereas the latter are statutory records, the registers and accounts of births that we hold are very much medical ones. Our earliest records of birth date from 1825, from the Edinburgh Lying-In Institution, and we have some maternity register entries that go right up to the early 1990s. As opposed to birth certificates which give biographical detail on parent(s) and child, the records that we hold are created in the course of a mother’s treatment and care and give relatively scant biographical detail and (unless a particular factor affects pregnancy or postnatal care) do not record what happened to mothers prior to admission or to mothers and children after they left the hospital (although a forwarding address is sometimes given). This is not to say that these records hold back, though, as this detailed description of a birth attended by nurses from Elsie Inglis’ Canongate Hospice shows!
Excerpt from Records of Confinement, The Hospice, 1907 ( LHB8A/12/1).
Nevertheless, birth records have much to offer genealogical researchers, in that they can reveal certain details that the ‘official’ record leaves out – one of our enquirers found out the name and address of a child’s father from one of our 1860s’ birth registers, for example, which was not recorded elsewhere. Genealogists usually contact us following the discovery that an ancestor was born in one of our region’s hospitals after looking at statutory records, usually via ScotlandsPeople. Until the mid-1920s, that hospital is invariably the Edinburgh Royal Maternity Hospital (ERMH), later the Simpson Memorial Maternity Pavilion (SMMP). For this institution, I’d normally find a birth recorded in a Register of Births (LHB3/14), which would tell me more about the parents of the child and their background, including their native place, the age of the mother, where the parents had originally come from and where they were going to after the birth. You’ll notice that, in the image below, there’s a column for the occupation of the mother if illegitimate, and the occupation of the father if the child was legitimate.
Page from ERMH Register of Births, 1885 (LHB3/14/4)
This emphasis on legitimacy gives us a clue about the purpose of the hospital: the ERMH was originally founded in 1844 as a place where poor women could give birth in a medicalised environment. It started off in Nicolson Street, but by 1879 settled in a new building in Lauriston Place, becoming Edinburgh’s first purpose-built maternity hospital. The original rationale for the hospital meant that it treated women with few other places to go. The ‘Mother’s occupation’ column in these registers in and after this period is peppered with shop assistants, farm workers and domestic servants, for example – (usually) young working women with no option to give birth at home, as most other women did until the mid-1920s when hospital births grew in popularity in the city. The relatively high number of illegitimate births in the ERMH could also be explained by the close proximity of the Lauriston Home (later the Haig Ferguson Home), a home for unmarried women undergoing their first pregnancy, founded by Dr James Haig Ferguson in 1899.

Constitution of the Lauriston Home, 1913 (GD1/7/1)

 Although we have some administrative records from this home, no records of the pregnant women confined there have survived. The ERMH Registers of Births will tell you if a mother came from the home though, giving a clue as to her circumstances. If you’d like to read about one LHSA researcher’s discovery of the Lauriston Home’s role in her own ancestor’s past, you can read an excellent account here

The next thing that I’d look for is an account of the birth itself – which focuses on medical facts, about mother and child. In this record, an Indoor Casebook from the ERMH, you can see the names and ages of mothers, but also stages in the processes of pregnancy:


Entries from ERMH Indoor Casebook, c. 1870s (LHB3/16/1)
With a bit of research into acronyms, you can see how the child was born and the health of mother and child after the birth. An interesting point for genealogists is that previous numbers of pregnancies were recorded – hinting whether there might be further ancestors to explore. The way in which this information was written varies through the years, but the type of detail remains very similar – even now, some people who have never known facts about their birth like to look at their own register entry to see how heavy and how long they were as a newborn, for example!

Of course, as medical science progressed and years went on, the style in which births were recorded changed. In my talk, I found that this table from the front page of a 1971 admissions book for the SMMP (descendant of the ERMH at the Royal Infirmary of Edinburgh) was a sharp illustration of this:

Front page from SMMP Admissions (LHB3/12A/21).
Key information about the length of pregnancy is symbolised by letters, and medical information about mother and child codified in a key with 82 possible numbers – used in SMMP recording of births from 1955. As I progress through to our more recent records of births, they become far more ‘medicalised’ and less obviously biographical and researchers might need some extra information or help to decipher them.

Birth records differ from other patient records that we hold in their slightly more complicated access conditions. Since entries in birth registers hold information for at least two people (the mother and the child[ren], and sometimes a father), each separate individual represented there has information rights, either under the Data Protection Act (1998) if living or through NHS Scotland guidance on the health records of deceased patients. Because our closure periods on adults and children differ, researchers looking at birth records after 1915 would need to talk to me about how they can access information from them – and it may be that they can see certain details in a birth register, but not others.

As well as registers from ERMH/SMMP and the Hospice, we also hold accounts of births from the Elsie Inglis Memorial Maternity Hospital, Bruntsfield Hospital, Deaconess Hospital, the Western General Hospital and the Eastern General Hospital – although the records that we hold may not cover everyone. If an ancestor was not born at home (as most people weren’t before hospital births became the norm in the 1950s), we also might be able to help. If a midwife from an institution attended a home birth, we also have some records of these visits, such as these Outdoor Casebook entries from ERMH from the 1840s:
ERMH Outdoor Casebook (LHB3/18/1)
We also have birth notification registers, giving skeleton information on all births in the City of Edinburgh – although there are a few gaps, we have these registers covering dates from 1916 until 1962. After the Notification of Births (Extension) Act 1915, local authorities were required to record all registered births as part of a duty to care for pregnant women, mothers and children under five. These registers also can tell us about other institutions that provided care for pregnant women (such as private nursing homes), but because of the lack of affiliation of most of these homes to what was to become the NHS in 1948 (meaning that they won’t be represented in our archive holdings), we cannot usually trace any further surviving records.


I always enjoy talking to groups about LHSA. We do offer a remote enquiries service, too, though – so if you think you can use the birth records that we hold, please don’t hesitate to get in touch.

Friday, 22 April 2016

What does that mean? The challenges of case note cataloguing


This week, Rebecca looks at one of the main challenges she faces in the RVH v TB project:
Cataloguing case notes can be quite a challenging task when you don’t have a medical background. Although we are interpreting the records, and not diagnosing patients, it is still important for us to understand what we are reading so that we can record the important information in our catalogues.
Firstly, doctors’ handwriting is notoriously difficult to read! Additionally, unfamiliar terms and abbreviations are often used (e.g. ‘syncope’ instead of ‘fainting’), medical terms for body parts are not always recognisable (my new knowledge from this project has won me many a point in a pub quiz), and some of the terms used are no longer in use.
Fortunately, there are web resources that can help. A combination of palaeography skills and Google usually helps to make sense of tricky handwriting. Google is also great for finding out what unfamiliar terms mean, as well as unexpectedly showing gruesome pictures of some medical conditions; my search history paints a worrying picture. We also use MeSH (Medical Subject Headings), a hierarchically organised index of medical terminology, to provide standardised terms – MeSH usually incorporates alternative and previous terms into its definitions, which is really useful.
These tools are great for standard medical terms and abbreviations, which makes up much of the case notes that we look at. However, in the RVH v TB case notes, some non-standard symbols are used which has required some detective work from me:
Samples from case notes showing different ways of expressing 'Tuberculosis' (see below) (LHB41 CC/1 and CC/2)
 
All of these symbols mean ‘Tuberculosis’. Here’s how I know that:
1.       This classification was used at Southfield Sanatorium. In his “Address in Medicine Delivered at the Seventy-Seventh Annual Meeting of the British Medical Association” in 1909, Sir Robert William Philip advocates a system of classification of tuberculosis which uses the symbol ‘L’ to represent the lung or local lesion, with three stages of severity. The symbol ‘S’, in upper or lower case, represents the extent of systemic involvement.
2.       The next two symbols (actually the same symbol written in two ways), usually appear in place of the word “tuberculosis” in the sentences “No family history of tuberculosis” or “No PS [physical signs] of tuberculosis”, and is sometimes used to represent a diagnosis.
3.       This classification was used at the Royal Victoria Dispensary, and has been a little trickier to work out. Based on what else is happening in the case notes in which it appears, where a patient has been subsequently hospitalised or a later letter refers to them as being diagnosed with tuberculosis, it definitely means tuberculosis, and it appears to have a similar grading scale as Philip’s classification above.
4.       This is another version of the same classification scale, also used at RVD, and seems to show a diagnosis of a quiescent or less active case of tuberculosis.
5.       This is the classification used at the Royal Victoria Hospital, which is helpfully explained on the back of the discharge summary (see below).
Reverse of a discharge summary from the Royal Victoria Hospital, explaining the classification scheme (LHB41/PR2.4347)
 
Those were all relatively straightforward to work out, but these things are never too simple. The case notes from the Royal Victoria Dispensary also feature the symbols shown as a diagnosis in the examples below, which I have so far been unable to ascertain the meaning of.
Extracts from case notes, showing X-ray reports and the diagnosis given. (LHB41 CC/2)
The case notes in which they appear lack the context which has helped in other cases, and there doesn’t seem to be much consistency across the case notes which would allow me to say with confidence that this means, for example, bronchitis, though it is almost definitely a lung thing. As the image shows, it sometimes appears alongside a TB diagnosis, so it probably isn’t tuberculosis.  If you have any ideas what it might mean, I’d be really grateful to hear them!
As you can see, a medical background is not necessary in order to catalogue the case notes, though some medical knowledge can really help when it comes to understanding them, particularly when they start using obscure terminology or symbols. Fortunately, we have the resources to deal with these challenges, which means that we can create useful catalogues to help unlock these fascinating records.
Sources:
LHB41 CC/1 and CC/2
R. W. Philip, ‘Address in Medicine Delivered at the Seventy-Seventh Annual Meeting of the British Medical Association’, British Medical Journal, 2, 2535, (31 July 1909), pp. 256-263

Friday, 15 April 2016

A man of principle: a look into the life of Eric F. Dott.

Today, I would like to expand on the life of Eric F. Dott, a conscientious objector during the First World War and a children’s physician at the Royal Hospital for Sick Children in Edinburgh. Under the project ‘Cataloguing Norman Dott’s neurosurgical case notes (1920-1960)’, much has been written about his brother Norman, the pioneering neurosurgeon from Edinburgh, but Eric was a no less remarkable man. Simultaneously a Christian, a pacifist and a socialist, this well-loved paediatrician stood up for his principles all his life.

Eric Dott was born on the 3rd of December 1898 in the Dott’s family house in Colinton, at that time a small village five miles out of Edinburgh. He was a bright young man who discovered his Christian faith at an early age: when he was 11 year-old he was deeply moved by an organist practising in the church near his house, and from this moment he pushed his whole family to go to Church, thing that the Dotts weren't doing before. He stayed consistent with his Christian beliefs during one of the darkest and most proving times of the 20th century: the First World War. In 1917, when he was eighteen, he was called up to active service and sent to a place near Kinghorn, in Fife. However, at the first opportunity he disobeyed a direct order on moral grounds and thus was sent to the guardroom under arrest – he had become a conscientious objector. He was sent to Wormwood Scrubs camp, where he endured solitary reclusion and severe restrictions. After a bit less than four months, he was transferred to Dartmoor Prison to do some work of ‘national importance’: it mainly entailed digging holes or breaking stones, activities that Eric called ‘a farce’. However the living and working conditions in Dartmoor Prison weren't as gruelling as in Wormwood Scrubs, and prisoners had more liberty. Eric Dott spent a lot of time debating with other men of similar principles about religion, philosophy, and politics. At first he had opposed the war because of his Christian principles, and then he had become increasingly interested in the political aspect of the conflict, influenced by his father’s ideas about socialism. This ideology stayed important for him: when his father Peter McOmish Dott died in 1934, Eric was left to administer the considerable sum of money he had left in his will for the benefit of the Labour Movement and Socialism generally. Eric founded the Peter McOmish Dott Memorial Library, where books were purchased with a bearing on socialist education.


A young Eric Dott soon after he joined the staff of Royal Hospital for Sick Children.


After his liberation, Eric enrolled at Edinburgh University to study medicine, and soon set up in practice as a doctor: by 1929 he had started up a small practice in Eltringham Gardens, off Rob’s Loan, in the west of Edinburgh, and by the mid-1930s he was working at the Royal Hospital for Sick Children. Records about him are somewhat lacking, however a few documents show what kind of doctor he was. His competence was recognised: in 1935 Eric Dott was appointed Honorary Assistant Physician to the hospital for five years, and in 1939 he was appointed ad interim as Physician of the Forteviot House. Eric also demonstrated his dedication and eagerness to help during the Second World War. Indeed, in a letter dating from 1939 addressed to Mr. Henry, the Honorary Secretary to the Hospital, he confirmed that he was absolutely ready to put his car and himself at the hospital’s disposal if the children needed to be evacuated. In another letter to Mr. Henry dating from December 1941, it is explained that Eric Dott had had to work both as a Ward Physician and as an Assistant Physician during one year because of a shortage of personnel: he gave a lot of himself during this difficult period.


Photograph of the Royal Hospital for Sick Children, where Eric F. Dott worked as a paediatrician.

I had the pleasure to have a chat with Professor Arnold Myers, who knew Eric Dott personally, to give a little personal touch to the portrait. Mr. Myers describes him as ‘a small man with nice features, very bright, alert and courteous’. He was a very keen chess player, and was very fond of his cat like his brother Norman was very fond of his dogs. Eric Dott spent his retirement in his quiet home of Canaan Lane, where he lived with his three sons, and died on the 8th of July 1999 in Edinburgh, aged 100.


Sources

Rush, C., and Shaw, J. (1990) With Sharp Compassion, Aberdeen: Aberdeen University Press. 

Goodall, F. (2010) We Will Not Go to War: Conscientious Objection During the World Wars, Stroud: History Press.

Conscientious objectors at Dartmoor Prison in England, c. 1917 [online]. Scottish Cultural Resources Access Network. Available from:  http://www.scran.ac.uk/database/record.php?usi=000-000-463-616-C [Accessed 14/04/2016]. Photograph of conscientious objectors at Dartmoor in 1917. Eric Dott can be seen on the front row, fifth from the left, wearing glasses.

Conscientious objection in Britain during the First World War [online]. Learn Space. Available from: http://www.ppu.org.uk/learn/infodocs/cos/st_co_wwone4.html [Accessed 14/04/2016].

Clements, K., Podcast 37: Conscientious Objection [online]. Imperial War Museums. Available from: http://www.iwm.org.uk/history/podcasts/voices-of-the-first-world-war/podcast-37-conscientious-objection [Accessed 14/04/2016].

Lothian health Services Archives, LHB5/36, Royal Edinburgh Hospital for Sick Children, 1859-1992.

Interview with Professor Arnold Myers who was a personal friend of Eric Dott, and whom we would like to thank for his time and contribution. [date of interview: 12/04/2016 at Edinburgh University Main Library]

Wednesday, 13 April 2016

Records, redaction and respecting the subject


As Louise discussed in her recent post on closed records, there are a number of legal restrictions that we have to navigate when providing access to the records in our care, such as the Data Protection Act (1998) and NHS Scotland guidance on records of deceased individuals. Not every access concern is legislated though, and this week Alice explains some of the thinking behind our procedures.

A volume of case notes from the early 20th century. These record not just medical information, but personal and familial information too. (LHB44/20/1)
The 19th and early 20th century case notes and patient registers that LHSA hold are a valuable resource for family historians, and we often receive enquiries relating to a specific patient. Where possible, if we find information on an individual we always aim to send photos of any relevant records to the enquirer. It is our general practice to block out or redact identifying information about any other patients when providing these photos, and understandably, this can seem strange to some researchers. Why bother redacting information about someone who has long been dead?

The case notes for this patient fall comfortably into the closure periods, but we've still taken measures to protect the patient's identity. (LHB44/20/1)
At a recent conference on the societal impact of records, I heard Dr Joanne Evans of Melbourne University, Australia, speak about how her feelings towards ‘open’ records have changed somewhat in recent years. The increased media coverage of historical abuses and the resulting inquiries has reminded us all that ‘records subjects’ are much, much more than this epithet suggests. The passing of time – say, 100 years - between a record being created and that same record becoming ‘open’ can easily lead us to disconnect the items we deal with from the lives they represent, but as these issues have highlighted, these items weren’t created in a vacuum. Although the subject of a record may have passed away a long time ago, the records themselves can represent a part of that person’s life, and – to some extent – live on as an avatar for them.  

A note accompanying one woman's admission papers. As well as redacting her name, age and number of children - all of which could be identifiers - we've also removed a further piece of particularly distinguishing information. (LHB44/29/1)

Another talk at the conference brought this even closer to home. In his discussion on the impact of the Public Records (Scotland) Act of 2011, Dr Hugh Hagan of the NRS noted that records made by and about us throughout our lives help us to answer the question of “how do you know who you are?”, in that they allow us to identify and describe ourselves and our relationships to others. With that in mind, it is important that we are mindful of how we as archivists treat such records. Dr Hagan recounted how one victim told the Shaw Inquiry on historical abuse that he had struggled to obtain records about his time in care, and when he did receive them, they were incomplete or had been so poorly managed that crucial contextual information was lost. He remarked to the Shaw inquiry that he felt the lack of respect the records had been shown reflected the lack of respect he had been shown as a young person in care. As the repository for historically important local records of NHS hospitals, LHSA exists almost as a branch of NHS Lothian, and we therefore need to consider how our treatment of and attitudes towards patient records reflects on them.


A case of 'congenital idiocy', brought about by "a fright from a mad woman" during pregnancy (LHB7/51/59)
Another factor that has to be considered is how much language – and particularly language around mental health – has changed since some of the records were first created. It’s not uncommon to find a 19th century patient described as “a profound idiot” or “dull and stupid”, or to hear fantastical and salacious accounts of how insanity manifested itself and what had instigated a patients admission to an asylum. While we can certainly glean a lot from such accounts – not least an understanding of how our attitudes have changed – it is vital we remember that these records are not created, kept, preserved and made available for our entertainment. They contain and reflect people’s lives, and we must never lose sight of the person in our search for the information.

Friday, 1 April 2016

Arty archives?

Over the last few months LHSA staff have been extending our work to help improve the environment in hospital for patients, staff and visitors. We’ve had some experience of this in the past, with LHSA collections being used as ideas for (and integral parts of) art installations in the Royal Infirmary. A great example of this is the ‘Unsung Heroes’ project where historic nursing badges were paired with modern jewellery made by staff and students at Edinburgh College of Art.

(Image copyright Shannon Tufts)



We're now involved in a major project called ‘Old to New’, which will create artwork based on the history of the Department of Clinical Neurosciences and the Royal Hospital for Sick Children for their new home on the Little France Infirmary site. We’ve already provided support to a researcher using the collections to draw out stories to be illustrated in the contemporary pieces that will be commissioned soon, and recently produced additional resources for artistic inspiration in the form of oral histories (we had a great time recording the experiences of a group of nurses who had trained at the Sick Kids in the 1950s).


You can find out more about the fantastic new facilities (opening in 2017) on the NHS Lothian website: http://www.nhslothian.scot.nhs.uk/OurOrganisation/PropertyDevelopments/CurrentProjects/ProudHistoriesNewChapters/Pages/default.aspx


...and watch this space to see how LHSA collections continue to contribute to the ‘Old to New’ artwork!

 

Friday, 25 March 2016

Ways in to closed records

In this week’s blog, Archivist Louise goes back to class….

Archivists come in all shapes and sizes (literally and metaphorically!) and from a variety of different backgrounds, but those working in professional posts during the last few years have one thing in common: a vocational qualification in record-keeping from one of seven recognised institutions in the UK and Ireland. One of these qualifications is based at the Humanities Advanced Technologies and Information Institute (HATII) at the University of Glasgow, and it’s where three of the four archivists in LHSA trained.

Therefore, when tutor Victoria Stobo asked Project Cataloguing Archivist Becky and I to speak to her students about the way in which we deal with confidential data in our everyday work, we were delighted, although we knew that (as ex-students) it would feel a little strange to be speaking from the other side of the classroom! Our role as archivists is all about access, but we need to give that access whilst protecting those people around whom the archive is built, and both our talks reflected how we do that in our different fields of work.

As archivist, most of my work with confidential data is around user services – helping our enquirers with questions about records closed to general public access. By ‘confidential data’, I mean material that is covered by either legislation that covers information about living individuals (i.e. the Data Protection Act) or NHS guidance that protects the patient and staff records of those now deceased. Since we are one of the largest medical archives in the UK, holding over one million patient case notes, I deal with questions about closed archives regularly.
One of my slides from the talk
Many people assume that records marked as ‘closed’ are beyond all access, but that is not necessarily the case. You are entitled to access any health information that LHSA may hold about you under the Data Protection Act (1998), for example, as long as you can prove your identity. We can also apply to the owners of our records, NHS Lothian, for enquirers to see closed records about other people if they can prove that they have a legitimate reason for wanting to see them, along with proof that the record subject has given consent if s/he is living, or that the enquirer can prove the record subject is deceased.

In our experience, people want to look at confidential material for two main reasons – either as researchers going through a large number of records, for whom the identity of individuals is not their main interest, and genealogists or other interested family members for whom identity of a person is central. We treat access to otherwise closed records very seriously, and I explained to the students that applying to see a closed record is far from a ‘rubber stamp’, but a considered process. I also went through the measures that we take to keep confidential information secure if an enquirer (such as an academic researcher in the reading room) is allowed to see a closed record.

When I first started my role as archivist, dealing with access to closed records was intimidating to say the least, but (as I explained to the students) working with legislation about access to records is an essential part of my role and soon became a lot less terrifying and a lot more intriguing! One of my favourite things about my research with closed records is that I work with people much closer to the record subject (even the record subject themselves) – this compression of time is a sharp reminder of the fact that names recorded in our archive are not just entries in registers but individuals with their own histories that led them here.

Becky’s role at LHSA is also about access to closed records, but in terms of the description of those records. As you know from last week’s blog, Becky is cataloguing tuberculosis case notes in order to give researchers an intellectual way in to these mostly-closed records. Becky catalogues using eXtensible Mark-up Language (XML) in order that she can both highlight key elements of cases for search and hide parts of the description in a public, online catalogue so that the identities of patients stay private. As Becky explained, her project (in common with Aline’s work on Norman Dott’s neurosurgical case notes) is designed to give researchers a guide to what these under-used records convey in order to realise their potential as academic (and genealogical and clinical) resources.

Becky explained to the students how she thinks of confidentiality in terms of a jigsaw. There are certain pieces of the puzzle that she must keep hidden inside a public catalogue in order to protect the anonymity of patients (such as a name, for example), but there are others (such as the fact that a person has tuberculosis) that do not in themselves reveal who somebody is. Even some identifying details (such as a home address) can be described in more generalised terms (since geography is fairly crucial to infectious diseases, Becky describes a patient’s origin in terms of electoral districts, for example). However, Becky has to be on her guard, since sometimes an apparently innocuous bit of information (like a precise occupation) can slide the pieces of the jigsaw into place, as neatly demonstrated with these slides:



We got more than a few questions from the aspiring archivists and records managers following our talk – and it was interesting to see what aspects of our work were of most interest to the students. All-in-all, an extremely successful morning – and nice to revisit our former course (although without the assignment deadlines, obviously!). 

Friday, 18 March 2016

Case notes: A window into the sanatorium

This week, Project Cataloguing Archivist Rebecca shares some of the insights she's had into tuberculosis treatment whilst cataloguing the case notes of Southfield Sanatorium...

It’s been a while since I wrote about the TB project for the blog, but work is progressing well (I’ve catalogued over 4000 case notes!), and a lot of fascinating stories have been uncovered. The first series of case notes from Southfield Sanatorium has been catalogued in full, and I wanted to take this opportunity to share some of what the case notes have taught me about this institution.

Southfield Sanatorium was an inpatient facility which took patients for a minimum stay of six months. Patients were selected based on the likelihood of recovery, so that only patients who were likely to improve were allowed entry to the institution.

Form completed by patients requesting admission to the sanatorium, committing to at least six months treatment if required. (LHB41 PR1.969)

The sanatorium was oversubscribed, and much of the correspondence included with the case notes refers to the length of the waiting list, and the prioritising of patients on it. The pressure on beds and the nature of the treatment meant that discipline was strict, and patients were removed for breaking the rules. Several patients also left early, against medical advice, due to homesickness or the unpalatability of the regime.

Letter informing of the dismissal of a patient due to "consistent impudence to the nursing staff". (LHB41 PR1.467)

In the days before the NHS, treatment at Southfield had to be paid for, at a rate of around £2 10/- a week (equivalent to around £90 today – and for at least six months!).  Local authorities were obliged to provide sanatorium treatment, so patients from other parts of Scotland would be sent to Southfield for treatment. Other organisations could also pay - usually for their subscribers, for people who worked in certain professions, or for charitable cases.


Letters from the Margaret de Sousa Deiro Fund and the Post Office Sanatorium Society, promising to pay treatment fees for patients. (LHB41 PR1.1050 and LHB41 PR1.969)

Some patients attended Southfield privately, paying up to £3 3/- a week (over £100 in today’s money) according to their means, but the medical directors and Almoners would often arrange to reduce fees for those who were unable to afford it. Even with these support mechanisms in place, TB could prove a costly diagnosis.


Request from a patient for a reduction in fees, with a letter granting the reduction. A later letter in this case file refuses to reduce the fees further. (LHB41 PR1.521)

The treatment provided was in line with that provided elsewhere; chiefly bed rest and gradual exercise, with the occasional surgery for patients for whom it was deemed suitable. Southfield itself didn’t have a large provision of surgical services, so anything more complicated than a simple artificial pneumothorax (the surgical collapse of a lung) would be performed at one of Edinburgh’s other hospitals. Southfield also provided non-surgical treatment such as old tuberculin and sanocrysin; controversial treatments even at the time due to the lack of evidence in their favour.
This may not sound like an impressive treatment regime now, but in the days before effective antibiotics it was the best that could be done, and most patients did recover – though it should be remembered that their good prognosis was why they were sent to Southfield in the first place.
A front view of Southfield Sanatorium (P/PL41/TB/022)

The information in this post has been taken almost entirely from the case notes themselves.  Seeing the case notes as a unit like this gives one a unique insight into the routine of sanatorium administration and treatment, a real sense of the hard work which went into obtaining treatment for people with such a delicate and difficult diagnosis, and a renewed appreciation for both antibiotics and the NHS!

This is just a very small amount of the information which the case notes contain – there are many more stories which I’ve uncovered, and many many more case notes to catalogue!

Sources:
LHB41 PR.1 – Southfield Sanatorium Case Notes
http://www.nationalarchives.gov.uk/currency